Program Overview

On Monday April 4th - Tuesday April 5th the Cystic Fibrosis Foundation Therapeutics Development Network will host the Spring TDN 2022 Conference at the Gaylord Palms in Kissimmee, FL. 
 
This in-person conference is designed to offer training and information to benefit clinical research teams conducting CF clinical research and the patients participating in the research. Additionally, the meeting provides opportunities for teams to work together, network with other CF clinical researchers, and collaborate regionally to identify best practices and resources to improve the quality and efficiency of cystic fibrosis clinical research activities.
 
Registration is now closed for this event.
 
Please contact Rochelle.DelosSantos@seattlechildrens.org with any questions about the program.
 

Educational Objectives

  • Apply partnership enhancement program learnings to engage more effectively with potential research participants
  • Describe different types of genetic therapies and their potential benefits and risks to patients and potential study participants
  • Identify potential partners and resources to enable effective collaborations
  • Identify tools and resources to optimize clinical research 
  • Plan for and prioritize for upcoming CF clinical studies

Session Formats

Plenary Sessions

All plenary sessions will be recorded and available for viewing after the meeting. Plenary session format will be panel lectures providing educational content to attendees.

 

Small-group Breakouts 

Only the Hot Topic sessions will be recorded. All small group breakout sessions are designed to be more interactive and require attendee participation in discussions.

Agenda

Sunday, April 3, 2022
5:00 PM - 7:00 PM
Registration Opens
 
Monday, April 4, 2022
7:00 AM - 9:00 AM
Registration
 
8:00 AM
Breakfast
 
8:45 AM
Plenary 1: Partnership Enhancement Program (PEP): Communication Strategies to Build Trust and Connection in Clinical Research
 
10:20 AM - 11:45 AM
PEP Breakout Sessions
Small-Group Discussion
11:45 AM - 12:45 PM
Lunch
 
12:45 PM - 1:45 PM
Hot Topic 1: Current TDN Pipeline and Related Challenges
Small-Group Discussion
RC and RegC Networking Session
Small-Group Discussion
2:00 PM - 3:00 PM
Best Practices for Onboarding New RC's
Small-Group Discussion
Hot Topic 2: Pre-clinical and Early Clinical Guidance for Genetic Therapies: What do we know and where are the gaps?
Small-Group Discussion
Optimizing Your Study Organization (Newer RC's)
Small-Group Discussion
3:15 PM - 4:30 PM
OPTIONAL: Grants Management System Help / Support
 
Sweat Test Certification
 
5:00 PM - 6:00 PM
Outdoor Cocktail Hour
 
6:00 PM
Dinner and Social Event
 
Tuesday, April 5, 2022
8:00 AM
Breakfast
 
8:45 AM - 9:45 AM
Plenary 2: Overview of Genetic Therapies
 
10:00 AM - 11:00 AM
Plenary 3: Recruitment Strategies for Genetic Therapies
 
11:15 AM - 12:15 PM
Breakouts: An Interactive Brainstorm: How can my research team build trust with people with CF who do not have access to CFTR modulators?
 
12:15 PM - 1:15 PM
Lunch
 
Time Zone: (UTC-04:00) Eastern Time (US & Canada) [Change Time Zone]

 

 

Please navigate to our Resources page in order to view special group rates at Walt Disney World.

This activity has been designed to meet the educational needs of the TDN Clinical Researchers involved in the care of patients with Cystic Fibrosis.

This activity is jointly provided by Medical Education Resources and Seattle Children's Research Institute.

This activity is supported by an educational grant from the Cystic Fibrosis Foundation.