Time
2:15 PM - 3:45 PM (EDT)
Name
Strengthening Relationships: Sharing What Matters with Our Care Team
Description

Sharing what matters to you is an important part of CF care. But our lives are busy and care center appointments can feel overwhelming, so it may feel difficult to connect with your care team and feel heard. This session will introduce the Partnership Enhancement Program (PEP), a CF Foundation-sponsored, evidence-based program that teaches relationship-centered communication skills to help individuals, families, and care team members be better partners for effective care. You will walk away from this session equipped with new strategies to communicate with your care team about your list of questions and concerns for a clinic visit, your emotions about these items, and clear next steps for a shared plan of action to move forward with your or your loved one’s care. The session will include a panel discussion led by both clinicians and community members, followed by small group discussions to better understand how you can use the PEP skills in your interactions with your care team. This session is for people with CF and family members who actively partner in their loved one’s care.

Chandra Gordon Carol Chace Fred Coste Rhonda List Michelle Mann Sarah Schottler Karen von Berg Patricia Rose Cynthia George Staci Self Brandi Middour-Oxler
Session Format
Workshop