Name
Patient and Caregiver Relationship
Jesse Galinkin Joan Galinkin Samantha Rick Mary Delany-Hudzik Erik Hudzik
Session Format
Panel
Time
2:30 PM - 3:30 PM (EST)
Description

In this storytelling panel, hear from caregivers and people with CF as they discuss how to navigate the patient and caregiver partnership while taking on a double-lung transplant. Panelists will share stories about how they communicate, what discussions are important to have throughout the process, and explore the challenges of balancing personal relationships and the role of caregiver.

Session Objectives
  1. Patient and caregiver pairs discuss how to navigate partnership through the lung transplant journey.
  2. Share experiences and strategies used to communicate and have difficult conversations with your person with CF or caregiver.