Full Name
Elinor Langfelder-Schwind
Connection to CF
Genetic Counselor, Regulatory Research Coordinator at Beth Israel Medical Center
Bio

Elinor Langfelder-Schwind received her Bachelor of Science in biology and society from Cornell University, Master of Science in human genetics from Sarah Lawrence College, and is certified by the American Board of Genetic Counseling. Elinor began her career in CF genetics as a program analyst in the Ethical, Legal, and Social Implications Program of the National Center for Human Genome Research (now NHGRI), where she helped to coordinate pilot studies on the risks, benefits, and limitations of implementing CF carrier screening in the general population. She has worked with adult and pediatric CF patients and families as a genetic counselor in Foundation-accredited CF centers for nearly 25 years, initially at St. Vincent's Hospital in New York City, and she currently holds the position at Mount Sinai Beth Israel. Elinor is an active member of the New York State CF newborn screening consortium, Cystic Fibrosis Reproductive and Sexual Health Collaborative, and National Society of Genetic Counselors (NSGC) CFTR Spectrum Disorders Special Interest Group, and she is first author of the NSGC Practice Recommendations on CF screening.  She works with the Mount Sinai Beth Israel Therapeutics Development Center as site administrative and regulatory research coordinator on CFTR gene modulation and other clinical research studies. Elinor is an advocate of educating patients, professionals and the public about CF genetics, having developed CF newborn screening educational materials for New York State, and served on the workgroup for the CF Foundation's Newborn Screening website content development. She also educates genetic counselors and genetic counseling students about CF as a clinical training supervisor, thesis advisor, and lecturer. Elinor chaired the NSGC Genetic Services Committee and has served on its national board of directors. She is currently the principal investigator for a Foundation screening improvement project grant to identify and address barriers to engagement of genetic counselors at cystic fibrosis centers. She has one college-aged son and lives in New Jersey with her husband, teenage daughter, and rescued Shi-Tzu. 

Elinor Langfelder-Schwind