CF FamilyCon day 2 begins in...

About CF FamilyCon

There is no single definition of “family,” and when you're living with cystic fibrosis, family can mean many different things: immediate family, extended family, loved ones or friends. Whatever it means to you, join us for the third annual CF FamilyCon on June 18 and 20, 2020.

This free, online, two-day event will provide a space for people with CF, their families and friends to connect virtually and share their experiences of living with CF and loving the people who are in it with them. Attendees will have the opportunity to learn from others and discuss aspects unique to life with CF through keynotes, panel discussions, group chats, story hour, and more.

No matter what your family looks like or who you consider to be family, you can find support and connection at CF FamilyCon 2020.

Program Planning Work Group

These events would not be possible without volunteers from the CF community.
Rob Ronnenberg,(Co-Chair) Chelsea Spruance(Co-Chair), Mary Sullivan (Co-Chair), Sky Adams, Anna Battista, Linda Bowman, Olivia Clark, Noor Elshaar, John Franklin, Alex Gantt, Lynda Griffin, Yvette Imsand, Jessica Jacqueline, Brenna Maas, Lauren Ortiz, Carl Riedy, Kristina Robinson, Lori Roth, John Schroeder, Melissa Shiffman, Rod Spadinger, Thomas Spruance, Mary Grace Tremblay, Mark Tremblay, Spring Youngman.

CF FamilyCon is open to people with CF, family members, caregivers or members of a support system who are 16 or older. Most sessions are open to all registrants, however access to some sessions will be limited based on your connection to CF. Please see the session descriptions for specified audience. Registration for those under 18 requires parent/guardian authorization. Due to the time this authorization takes, registration for anyone under 18 will close 24 hour prior to the event. Minor registration will close for CF FamilyCon on Wednesday, June 17 at 12:00 p.m. ET.

For questions about this event, please email


All times listed below are Eastern Daylight Time (EDT).

7:00 PM - 8:00 PM (EDT)
8:00 PM - 8:15 PM (EDT)
8:15 PM - 9:15 PM (EDT)
Small-Group Discussion
9:15 PM - 9:30 PM (EDT)
9:30 PM - 10:30 PM (EDT)
10:30 PM - 11:00 PM (EDT)