About BreatheCon 2021
Welcome and thank you for joining us in the planning of the sixth annual BreathCon!!
Our hope for BreatheCon 2021 is that each and every person walks away feeling the benefits of connection and commUNITY. CF affects us all in such different ways, but immediately connects us to one another at the same time. Having different life experiences with CF gives us the opportunity to connect and learn from one another through our stories.
This year we would like to focus not only on physical health, but also mental and emotional health, as CF impacts all areas of our lives. Something that has helped us to interpret our unique experiences and bring balance to our lives is creativity and we hope to highlight the benefits of creative expression throughout this year’s event in various ways.
We hope that BreatheCon 2021 will provide you with the resources and support you need to reignite your passion to connect, to learn and to create.
Read on to learn more about the expectations and goals of this work group. To volunteer to join the BreatheCon Work Group, please click the button below. The work group will launch on Tuesday, July 6 at 6:30 pm EDT || 5:30 pm CDT || 4:30 pm MDT || 3:30 pm PDT.
Even if you can't attend the kick-off call, please register to ensure you receive follow-up information! Email communityconferences@cff.org for more details.
We are looking forward to getting to know you and making BreatheCon 2021 the best it can be!
- Olivia & Sarina
Olivia Clark,
BreatheCon 2021
Co-Chair
Sarina Sandstrom,
BreatheCon 2021
Co-Chair
Goals of the BreatheCon work group
Learn more about the expectations and goals of the BreatheCon work group!
BreatheCon is a free two-day community conference for adults with cystic fibrosis that provides a virtual space to share, connect, and learn from others with CF through open and honest dialogue. The event will feature panels, workshops, fun activities, and small-group video breakout discussions on issues that are unique to people living with cystic fibrosis.
CF Foundation community conferences are designed by and for the cystic fibrosis community. As organizers of the event, the work group is charged with discussing and reflecting on both personal experiences, and thinking of the needs of the broader multifaceted CF community to create an inclusive event and program agenda. Work group membership is not limited and we greatly value having a diverse representation of CF experiences.
The work group is responsible for planning and executing both the programming and event outreach for BreatheCon. There will be opportunities to lead specific projects and initiatives throughout the planning processes. Responsibilities may include, but are not limited to:
- Attending weekly planning meetings
- Actively participating in online discussion between meetings
- Developing the program agenda, including writing session titles and descriptions
- Designing panel and/or workshop content and outlines
- Identifying and selecting session speakers and activity leads
- Serving as an event speaker, facilitator and/or welcome ambassador
- Developing event promotional messaging materials and encouraging community members to register
The duration of the work group is July through September 2021. Members can expect to have 2-3 hours of work per week, including weekly planning calls.
Weekly meetings are held most Tuesdays at 6:30 p.m. EDT || 5:30 p.m. CDT || 4:30 p.m. MDT || 3:30 p.m. PDT through Zoom video conferencing.
Ready to help plan?
