Name
Living with Advanced Lung Disease without a Transplant
Description
Audience: People with CF who have not had a transplant
The CF journey can take many different paths, and for some with advanced lung disease, it may not include transplant. This group will allow folks with all different experiences - choosing not to receive a transplant, or ineligible for transplant for examples, to share their story and connect with others in similar situations.
Session Objectives
- Define the reasons for advanced lung disease: weighing the options for transplant, choosing not to receive a transplant, and experiencing rejection with a transplant.
- Share that advanced lung disease does not always mean end of life but learning to live with palliative care or navigating rejection.
- Discuss how to share this experience or decision process with loved ones and the CF community.