Name
Living with Advanced Lung Disease without a Transplant
Description
Audience: People with CF who have not had a transplant
 
The CF journey can take many different paths, and for some with advanced lung disease, it may not include transplant. This group will allow folks with all different experiences - choosing not to receive a transplant, or ineligible for transplant for examples, to share their story and connect with others in similar situations.
Session Objectives
  1. Define the reasons for advanced lung disease: weighing the options for transplant, choosing not to receive a transplant, and experiencing rejection with a transplant.
  2. Share that advanced lung disease does not always mean end of life but learning to live with palliative care or navigating rejection.
  3. Discuss how to share this experience or decision process with loved ones and the CF community.