Name
Living with Advanced Lung Disease Post-Transplant
Description
Audience: People with CF
Stage: Post-Transplant
The post-transplant journey can take many different paths, and for some that includes advanced lung disease or rejection. This group will allow folks with all different experiences -- such as choosing not to receive a second or third transplant, or rejection post-transplant, and others -- to share their story and connect with others in similar situations.
Session Objectives
- Define the reasons for advanced lung disease: weighing the options for transplant, choosing not to receive a transplant, and experiencing rejection with a transplant.
- Share that advanced lung disease does not always mean end of life but learning to live with palliative care or navigating rejection.
- Discuss how to share this experience or decision process with loved ones and the CF community.