Name
Living with Advanced Lung Disease Post-Transplant
Description
Audience: People with CF
Stage: Post-Transplant
 
The post-transplant journey can take many different paths, and for some that includes advanced lung disease or rejection. This group will allow folks with all different experiences -- such as choosing not to receive a second or third transplant, or rejection post-transplant, and others -- to share their story and connect with others in similar situations.
Session Objectives
  1. Define the reasons for advanced lung disease: weighing the options for transplant, choosing not to receive a transplant, and experiencing rejection with a transplant.
  2. Share that advanced lung disease does not always mean end of life but learning to live with palliative care or navigating rejection.
  3. Discuss how to share this experience or decision process with loved ones and the CF community.