1:00 - 1:30 p.m. ET      Keynote
Family is What You Make It

Keynote
Audience: CF Adults, Partners/Spouses
The keynote will set the stage for the first portion of CF FamilyCon for adults with CF and their partners. Hear from one married couple that has navigated the ups and downs of blending families, caregiving through transplant, and other challenges while supporting an intimate relationship. You'll also hear from a single adult with CF about how they define family, how they use the support of friends to create a family, and how they explore the decision to date or not to date.

1:30 - 1:45 p.m. ET      Break

1:45 - 2:45 p.m. ET      Breakout Sessions

2:45 - 3:00 p.m. ET      Break

3:00 - 4:00 p.m. ET      Breakout Sessions

• Massage for CF
  Format: Workshop
  Audience: CF Adults, Partners/Spouses
  CF is stressful. Join a licensed massage therapist to learn self-massage and partner massage techniques.
• Single Parenting as a CF Adult
  Format: Group Discussion
  Audience: CF Adults
  A place for CF adults to discuss the challenges of solo-parenting with CF. How do you explain CF to your children in an age-appropriate way and work through their feelings and/or fears? How do they participate in your CF, if at all? How do you balance treatment time with parenting? What do you do when your kid brings home a cold, virus, or other illness? Let's share the tips and tricks we use in our own lives as we learn from each other and share the single-parent experience as an adult with CF.
• Navigating Intimate Relationships Through Health Ups and Downs
  Format: Group Discussion
  Audience: CF Adults, Partners/Spouses
  In this session, participants will share how they have kept their love life going during hospital stays, IV medication, transplant, and the general daily life with CF. Come tell your story, and learn helpful tips to keep the spark in your relationship alive.
• Menopause
  Format: Group Discussion
  Audience: Women with CF
  Are you just starting menopause or in the throes of it all? In this session we will describe and discuss the typical experience of menopause and consider how it is different for women with CF. Bring your stories, and feel free to share any changes you have noticed with aging and how it affects your CF.
• CF and Body Image  
  Format: Group Discussion
  Audience: CF Adults
  Ever felt self-conscious about skinny arms or a steroid-induced moon face? Ever been mortified because someone asked if you were pregnant and you weren't? CF is thought of as an "invisible illness," but for some of us, the physical distinctions that come with the disease can be hard to manage. These effects can be tough for adults and adolescents alike. Come have a conversation in a supportive environment with people who understand.
• LGBTQ CF Community
  Format: Group Discussion
  Audience: CF Adults, Partners/Spouses
  Come join other adults with CF who are also a part of the LGBTQ community. It can sometimes be difficult to date with a chronic illness, but we have some good experiences too. We have a unique experience in life that not many others can relate to, so come share your stories of living as a member of two communities -- LGBTQ and CF.

4:00 - 4:05 p.m. ET      Break

4:05 - 4:15 p.m. ET      Part 1 Closing

4:15 - 5:15 p.m. ET      Socials/Break

Is there a topic (any topic!) you want to talk about with other FamilyCon attendees? Share it in the chat room, and if others want to talk about it, a video chat link will be made available for your group. Debrief the day’s topics, or connect about hobbies, interests, or any other aspect of life.

The second half of CF FamilyCon (5:15-10 p.m. ET | 4:15-9 p.m. CT | 3:15-8 p.m. MT | 2:15-7 p.m. PT) will focus on understanding how CF affects family dynamics and is open to anyone touched by CF who may have questions, frustrations, ideas, or just needs someone else who understands their perspective. No matter what your family looks like or who you consider to be family, you can find support and connection.

5:15 - 6:15 p.m. ET      Keynote

An Inside Look: Connections and Conversations about Living with CF
Keynote
Audience: Everyone
This keynote will celebrate the relationships that our lives with cystic fibrosis depend on. We will be featuring real conversations that people living with CF are having with their loved ones, who are on the front lines of care and support, about the everyday moments that make up their lives together. These stories will be full of hope, laughter, and connection, and we hope they will empower you to have the same kinds of conversations with your loved ones. Everyone is welcome!

6:15 - 6:30 p.m. ET      Break

6:30 - 7:30 p.m. ET      Breakout Sessions

• Say it in Writing First
  Workshop
  Audience: Everyone
  Do you feel frustrated that you can't find the right words to describe how you are feeling? Do you have a hard time knowing how you feel? Do you want to smile more? If you answer “yes” to any or all of these questions, then this workshop is for you. Come learn about free-writing as a tool for self-reflection and creativity. You won't be required to read what you write, rather we will be using prompts to practice free-writing and engaging in discussion about the process. This session will be led by writers Elizabeth Amber, an adult with CF, and her mom, Ruby Honan.
• Mental Health
  Panel Discussion with Q&A
  Audience: Everyone
  CF can take its toll on everyone, both individuals with CF and their family members. This panel will feature community members discussing their own challenges, and reflections from a pediatric psychologist who works with CF families. Join in to hear about what caring for your mental and emotional health entails, including tools, resources, and sharing experiences.
• School and CF
  Group Discussion
  Audience: CF Parent Groups based on grade level of your child (Pre-school/Elementary, Middle School, High School, College)
  How will my child take their enzymes at school? What is a 504 plan or an IEP? How do I prepare my child for college? There are many school-related issues for our kids with CF, and these issues change as our children grow and progress through school. In this session we will break out into groups based on the school age of our kids and discuss school-related topics. Parents can discuss problems that their child has experienced and/or ways they have navigated thorny issues. Come to share your wisdom and learn from other parents.
• Hospitalizations Disrupting Family Life
  Group Discussion
  Audience: Separated into CF Parents Group, CF Adults Group, Partners/Spouses Group
  Hospitalizations never happen at the right time. They happen right before or during final exams, holidays, or right in the middle of summer. How do you make the most of these life pauses? Come share your stories and tips for making hospital life bearable. Share tips on packing lists, collaborating with nursing staff, and how to get a good night’s sleep.
• What about Siblings?
  Panel Discussion with Q&A
  Audience: Open to Everyone – Target Audience; Siblings, Parents, Grandparents
  Being the sibling of a person with CF has challenges. Come hear from and chat with siblings of people with CF and what that life is like. There are funny moments that come with having a sibling with CF, but there are also scary and lonely moments. Learn how some siblings in the CF community have acted as caregivers and best friends, and how siblings create their own relationships and meaning in a CF family.  Parents and grandparents are invited to this session to gather ideas on how to support their CF sibling.
• CF 102
  Panel Discussion with Q&A
  Audience: Everyone
  You know what CF stands for and you have a rudimentary understanding of how it affects your friend or family member’s lungs, but perhaps you’re a bit reluctant to admit that you don’t understand much more than that. Does this sound like you? If so, please join us for this relaxed session to learn a bit more about CF, and to have a non-judgmental place to ask those questions you might not want to ask your friend or family member. This session will include two adults with CF and a CF clinician to answer your questions.
• Emotional Impact of CF
  Group Discussion
  Audience: Groups based on connection to CF: People with CF, Parents, Grandparents, Spouses/Partners, Child of a person with CF, Friends, Other family members
  The emotional toll for those living with CF, as well as a parent, sibling, grandparent, friend or any member of the support system, can be exhausting and challenging. This session provides an opportunity to share experiences and insights about the impact of CF on your emotional and mental well-being. We will discuss topics including stress, anxiety, guilt, depression, and isolation, both how they affect daily life and how they change over time and in periods of acute health challenges.

7:30 - 7:45 p.m. ET      Break

7:45 - 8:45 p.m. ET      Breakout Sessions

• Life on the Med Cart
  Workshop
  Audience: Everyone
  Come swap CF organization tips and tricks. From home life, hospital life, to travel -- what works for you?
• Parenting a Child with CF
  Group Discussion
  Audience: CF Parent Groups Based on Child’s Age: Infant/Toddler (0-4), Younger Child (5-12), Teenager (13-18)) Every parent has something to teach and to learn! As a parent of a child with CF, there are many ups and downs. Even with all the joys of parenthood, CF can bring challenges big and small. You are constantly balancing and encouraging your child’s care regime and handling infection concerns while letting your child be a child. Parents of infants, toddlers, younger children, and teens are welcome to join this session to share your joys, trials, questions, challenges, and experiences.
• Lessons from CF Adults
  Panel Discussion with Q&A
  Audience: Open to Everyone – Target Audience; Parents, Grandparents
  They say hindsight is 20/20. Here is your chance to ask the CF experts! As parents, we are always looking for ways to help our kids thrive despite their CF. This panel will comprise successful CF adults willing to answer our questions about anything from organizing meds and time management, to things that their parents did to help them along their journey. Hear about some of the things that worked well for these families, some things that might not have worked so well, and how we think about parenting CF kids for future success.
• How to Best be Supportive and Ask Better Questions
  Panel Discussion with Q&A
  Audience: Everyone
  Being a part of someone’s support system can be difficult and make us feel vulnerable no matter what. It can be even more challenging when we don't know how to talk with or ask questions to a loved one struggling with illness or any of the surprises that having CF can bring. How can we ask effective questions and know what to listen for? In this panel of two people living with CF and two primary caregivers, we will explore what support has looked like in their lives and what questions and conversations are helpful – and not so helpful. We will talk about challenges they face day-to-day, and the differences in acute care versus supporting quality of life. We hope that you walk away with tools to help you ask good questions and build an effective support system for the families and friends in your circle who are managing life with CF.
• Navigating Relationships While Caring for a Child with CF
  Group Discussion
  Audience: CF Parents
  As parents, we tend to put aside our relationship with our spouse/partner while managing our daily lives and taking care of our children with CF. We know it is important to nurture our relationship, yet often we feel like there are not enough hours in the day. Fear, stress, resentment, financial strain, sleep deprivation, doctors’ appointments, and medical decisions all contribute to our relationship struggles. Whether you don’t know how to approach the struggle or you’re trying to figure out how to be better together, this may be the session for you. Join to connect with other parents who have similar challenges in their relationship.
• Late Diagnosis
  Group Discussion
  Audience: CF Adults Group, Family Members Group
  Whether you were misdiagnosed, mostly free of symptoms, or sick for most of the time leading up to your diagnosis, being diagnosed with CF later in life brings its own set of challenges. In this session we'll discuss the unique challenges that come with a late diagnosis.
• Emotional Impact of CF
  Group Discussion
  Audience: Groups based on connection to CF: People with CF, Parents, Grandparents, Spouses/Partners, Child of a person with CF, Friends, Other family members
  The emotional toll for those living with CF, as well as a parent, sibling, grandparent, friend or any member of the support system, can be exhausting and challenging. This session provides an opportunity to share experiences and insights about the impact of CF on your emotional and mental well-being. We will discuss topics including stress, anxiety, guilt, depression, and isolation, both how they affect daily life and how they change over time and in periods of acute health challenges.

8:45 - 8:50 p.m. ET      Break

8:50 - 9:05 p.m. ET      Part 2 Closing

Join CF FamilyCon co-chairs Lynda Griffin and Anna McVey-Tyson as they close out the second annual event with special guest Ashley Ballou-Bonnema. Ashley, an adult with CF, professional vocalist, private voice instructor, and executive director of Breathe Bravely, will debut the original and powerful work of the sINgSPIRE Virtual Choir: a powerful group of singers defying CF by joining their voices together as a collaboration of strength, tenacity, and unified unrelenting hope.

9:05 - 10:00 p.m. ET    Socials