Date
Saturday, September 26, 2020
Name
1B - I'm Still Waiting for My Miracle Drug
Session Format
Small-Group Discussion
Description
When Trikafta came out, it became something like a miracle drug for 90% of people with cystic fibrosis. We are the 10% who don't get to be a part of this miracle. And that's okay! This session allows a space for us to connect and realize that while it's okay to be upset that we can't take Trikafta (or it doesn't work for you) we can still lead a happy and positive life with others by our side. This session is for anyone who can't take Trikafta for any reason, whether intolerance, lack of results, rare mutations, post-transplant, liver disease, etc.
Session Objectives
- Know it's okay to be upset that we can't take Trikafta or that it does not help like it should.
- Know we are still able to live a happy and positive life.
- See that there are other people like us, and we are stronger together.
Speakers