Date
Saturday, September 26, 2020
Name
I'm Still Waiting for My Miracle Drug
Session Format
Small-Group Discussion
Description

When Trikafta came out, it became something like a miracle drug for 90% of people with cystic fibrosis. We are the 10% who don't get to be a part of this miracle. And that's okay! This session allows a space for us to connect and realize that while it's okay to be upset that we can't take Trikafta (or it doesn't work for you) we can still lead a happy and positive life with others by our side. This session is for anyone who can't take Trikafta for any reason, whether intolerance, lack of results, rare mutations, post-transplant, liver disease, etc.

Session Objectives
  1. Know it's okay to be upset that we can't take Trikafta or that it does not help like it should.
  2. Know we are still able to live a happy and positive life.
  3. See that there are other people like us, and we are stronger together.