Date
Saturday, September 26, 2020
Name
The Trikafta Experience
Session Format
Small-Group Discussion
Description

There is still no cure for CF, although, while not everyone can take it, and while everybody's experience with it is different, Trikafta’s release this past year has been a huge step forward in the hope for a cure. This session will allow people to discuss their personal experiences with Trikafta and how it has affected their health and life outlook. There are many people on various ends of the Trikafta spectrum of success, and this is an opportunity to share our newfound successes, worries, or share expectations that haven’t quite been met. This medication changes the world for a lot of us, so let's all navigate this new future together!

Session Objectives
  1. Understand that different people have different experiences and results with Trikafta.
  2. Look at measuring success with Trikafta by quality-of-life improvements just much as we look at big boosts in PFTs.
  3. Hear stories of how Trikafta has changed people's outlook on life.