Life Without Modulators - Small Group Discussion

While many are celebrating the progression of CFTR modulators (like Trikafta®, Symdeko®, Kalydeco® and Orkambi®), others are waiting for their “wonder drug.” To support these members of the CF Community, the next Small Group Discussion will be Life Without Modulators.

This discussion is for adults with CF who are not eligible for or not benefiting from a CFTR modulator. 

The Life Without Modulators discussion will take place for 75 minutes, on Wednesday, April 12 from 7-8:15 p.m. EST.

Discussions will be peer-led with one or two CF Foundation staff present during the conversations. Please note this is not a support group facilitated by a mental health professional.

To register please click the word REGISTER above, next to HOME

Before you register, please note the following:

  1. **Community Guidelines - Before completing your registration, please take a moment to review the CF Foundation's Community Guidelines.
  2. **Privacy Policy - By registering, you agree that you understand the CF Foundation will handle your information as described in its Privacy Policy.
  3. **Participant Directory - We know that participants like to share email addresses with each other to follow up individually afterwards. When you register you can select to have your contact information (email) shared with other participants after the session. For the purposes of this session social media information will be your email address. 

If you have any questions or trouble registering, please contact Rachel at