Full Name
Rena Barrow
Connection to CF
Parent of two with CF
Bio

My name is Rena Barrow and I am the mother of two kids with CF. I am passionate about CF because I want to make a difference and change the narrative when it comes to early diagnosis, education and medication therapy for all affected by CF. I’m hoping that at least one person can benefit from our journey or simply be inspired. It is my mission and I am totally indebted to finding solutions for those who may be affected, or uncertain, and hopeless population of CF’ers. We understand and are there, were there, and our job is unfinished. No cure equals no days off. I have started a foundation called "TwoSaltyOkes" in honor of my two salty heroes who've both battled through being misdiagnosed as newborns.. I hope to expand my work and involvement within my newly started foundation really soon.  The fight shall continue until there is a cure!  

You can follow our story on IG, youtube, tikTok @Twosaltyokes

for inquiries email Twosaltyokes@gmail.com