Nicole Kohr
Person with CF
New Bern, NC

Nicole is a cystic fibrosis patient, a bilateral lung transplant recipient, and the founder of Colie Creations Inc (an award-winning 501c3 nonprofit that specializes in storytelling). She has spent most of her life compiling a series of works including 5 children’s books, a short, graphic novel, and a full-length musical. Nicole is an active patient advocate and has lent her voice to several organizations through public speech and blogs. Some organizations include the Cystic Fibrosis Foundation, Boomer Esiason Foundation, Temple University, Rutgers University, etc. Nicole is also the volunteer engagement chair of the CFF’s Eastern/Central Carolina’s chapter and is excited to recruit more passionate individuals into the CF community. For more, visit ColieCreations.org or IG: @cystic4real.

Nicole Kohr